May 30, 2024 What are the risk factors for developing Richter’s Transformation? - by Janna P from USA Topics: CLL, Cytogenetics, Genetic Factors, IGHV, Richter’s Transformation, Risk Factors View Answer
March 22, 2024 I have multiple myeloma and I have been treated for it for the last 13 years. What is the latest news on the side effects from CAR T-cell therapy? - by Elizabeth C from USA Topics: blood cancer treatment, car t-cell therapy, immunotherapy, myeloma, side-effects View Answer
March 20, 2024 And for the past thirteen years, I have lived with a rare incurable yet highly treatable blood cancer called WaldenstrÓ§m macroglobulinemia. How do I live in the shadow of incurability? - by Lisa W from USA Topics: blood cancer, chronic cancer, hope, mental health, Waldenstroms Macroglobulinemia View Answer
March 20, 2024 Please explain the difference between high grade and low grade lymphoma. - by Rita S from USA Topics: aggressive lymphoma, blood cancer, indolent lymphoma, non hodgkin's lymphoma, slow growing lymphoma View Answer
March 1, 2024 How do you find financial assistance grants? - by Rogina R from USA Topics: blood cancer, copay, financial assistance, information specialists, support resources View Answer
June 13, 2023 As a CLL survivor, how often should I receive a CAT scan or an MRI. If this is not a standard procedure, how will the doctor know when the cancer has returned? - by Rene B from USA Topics: active observation, blood count, blood tests, cancer, CAT scan, CLL (chronic lymphocytic leukemia), consultation, hemoglobin (Hb), lymph node, monitoring, MRI (magnetic resonance imaging), physical exam, platelets (PLT), standard of care, standard procedure, symptoms, white blood cell count (WBC count) View Answer
June 2, 2023 I’m a CLL patient and my question relates to CRISPR, the gene editing tool. How soon with this become a reality in the treatment of leukemia and other blood cancers? - by Barry G from USA Topics: CAR T Therapy, CLL (Chronic Lymphocytic Leukemia, CRISPR, diffuse large B-cell lymphoma (DLBCL), follicular lymphoma (FL), gene editing tool, genetic therapy, multiple myeloma (MM), mutation, sickle cell disease (SCD), T cells View Answer
June 1, 2023 Are there supplements, diet, or other activities that can help or hurt my leukemia and boost my immune system? - by Mark W from USA Topics: cancer, diet, food safety, healthy eating, healthy immune function, immune supportive diet, immune system, immunocompromised, leukemia, nutrients, nutritious diet, oncology dietician, patterns of eating View Answer
May 10, 2023 I'd like to know what causes TKI withdrawal syndrome and why do some people get it so much worse than others. - by Tracey F from USA Topics: anti-inflammatories, antihistamines, arthritic symptoms, BCR-ABL, chronic myeloid leukemia (CML), fatigue, inflammatory symptoms, joint pain, KIT, mechanical symptoms, TKI therapy, TKI withdrawal syndrome, treatment free remission (TFR), tyrosine kinase inhibitors (TKI), withdrawal syndrome View Answer
May 9, 2023 I had a successful transplant 18 months ago. I’ve always been physically active, but I can’t seem to shake related health issues. Will I ever be back to where I was prior to the disease? - by Beth W from USA Topics: (cGVHD), aldolase, chemotherapy, chronic graft versus host disease, echocardiogram, enzymes, exercise, heart problems, kinase, lung function tests, quality-of-life, skin issues, tachycardia, transplant, weak muscles, weight gain View Answer
March 10, 2023 I’ve had lymphoma, leukemia, and myeloma diagnoses within my immediate family. Are these diseases connected, and are my family members at elevated risk? - by Joan C from USA Topics: acute myelomonocytic leukemia (AML NOS), B-cell lymphoma, B-cell malignancies, CLL (chronic lymphocytic leukemia), DLBCL (double-hit BCL-2/MYC), genes, hematological malignancies, hereditary malignancies, Li-Fraumeni Syndrome, lymphoproliferative disorder (LPD), myeloma, non-Hodgkin lymphoma (NHL), POT1 mutation, predisposition, richter’s syndrome (RS), TP53 gene View Answer
January 24, 2023 When I was diagnosed with acute myeloid leukemia, I was informed I had a gene mutation. How do genetic mutations and chromosomal abnormalities form and how are they able to go back to normal after chemotherapy? Was this gene mutation caused by something I did? - by Elissa B from USA Topics: acute myeloid leukemia, BRCA2, chemotherapy, chromosomal abnormalities', DDX41 (Dead-Box Helicase 41), DNA, DNA repair genes, GATA2, genetic clock, genetic risk, Genetics, hematological malignancies, inversion 16, molecular, tumor suppressor genes View Answer
January 6, 2023 Hello, I'm being treated for chronic lymphocytic leukemia and polycythemia. My question is how many people in the United States have both of these? Thank you. - by Mike B from USA Topics: CLL (chronic lymphocytic leukemia), hematologic clones, incidence ratio, lymphoid disease, lymphoma, malignancies, MPN (myeloproliferative neoplasms), myeloid disease, population-based database, primordial stem cell, PV (polycythemia vera), PV myelofibrosis, SEER (Surveillence-Epidemiology-and-End-Results), thrombocythemia View Answer
January 6, 2023 After months of chemotherapy, my principal concerns and questions were related to diet and exercise. Can you please provide some advice on the best path moving forward? - by Thomas G from USA Topics: antioxidants, APL, cancer, cholesterol, diet, excercise, malnutrition, Nutrition, obesity, Plant-based diet, Wellness View Answer
January 6, 2023 Why are some transplants done with stem cells and other transplants are done with bone marrow? What factors determine the plan? - by Christine M from USA Topics: aplastic anemia, bone marrow aspiration, bone marrow transplant (BMT), CD34 selection, chronic graft versus host disease (cGVHD), filgrastim, graft vs. host disease (GVHD), Granulocyte-Colony Stimulating Factor (G-CSF), malignant disease, neutrophil recovery, pediatric patients, peripheral blood stem cell transplant, platelets, post-transplant cyclophosphamide, recovery, stem cell transplant (SCT) View Answer
November 9, 2022 My question is in regards to my induction treatment that has been completed, but the SCT was delayed due to several imbalances in my white blood cells and liver enzymes. What steps can be taken after chemo to correct the body's chemical imbalances? - by Laura K from USA Topics: Acute Lymphoblastic Leukemia, ALL, asparaginase, blood cell count, blood counts, inotuzumab, SCT, Stem Cell Transplantation, transplant, veno-occlusive disease, VOD View Answer
November 7, 2022 I have multiple myeloma and the side effects of my condition include neuropathy in my legs. I have been able to relieve the side effects with pantyhose. How effective are pantyhose for cancer? - by David Z from USA Topics: compression, multiple myeloma, neuropathy, pantyhose, peripheral neuropathy, preventive strategies, side effects View Answer
May 20, 2022 My three year old son is in his second year of remission from acute myeloid leukemia. My question is, how likely is it for his sibling to also be diagnosed in the future? - by Molly C from USA Topics: Genetics, Heredity View Answer
May 17, 2022 Does acupuncture provide any benefits to patients that are suffering from blood cancers and disorders? - by Kelly D from USA Topics: Acupuncture View Answer
May 17, 2022 Why do you develop new health problems that affect your quality of life? That are a likely outgrowth of deficiencies in your immune system? For example, digestive problems or severe allergies? - by Monica B from USA Topics: Health Problems, immune system, Quality of Life View Answer